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Chat room possibilities on this site?

Started by wendiann24 on 05/24/2010 10:51am

I know that I feel at home on this site as I'm pretty sure alot of you do too. How many people feel that a chat room would be a great service on this site? We get into our discussions on the advice boards, but wonder the possibility of a chat room, or multiple chat rooms in addition to the boards. I feel that alot of us are connecting with each other in many ways and instead of starting new discussions up just for one to ask how someone is doing after or leading up to surgery or procedures, we could use a chat room instead. It'll free up the boards for the in-depth questions and leave the "chit-chatting" for the chat room instead of filling up the boards. Who's up for it?

Admin? What are the possibilities of adding a chat room on to the site? We don't want to break or bend the rules by giving out our emails, or risk being booted off because we care soo much that we are trying to truely help one another. I personally feel that this site with all the caring people on it have made it into a sort of therapy for me. I know all of us can relate to the pain and talking about it does help. Thank you for this wonderful site and for allowing us to start up discussions and go as far out as some of them do. What do you say....Chat room a possibility?

For all of us members...Again I ask.....Who's up for a chat room if it was possible on this site?

I'm all in!

Wendi

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Wendi:

Count me in! I think that's a great idea. Let's hope the powers that be listen to us.

Pam

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Thanks Pam!

I have sent an email to customer service and am waiting to hear back from them, but I do believe if we get enough support from the members saying "hell yeah, I'd use the chat room", they may just pull it through for those of us who definately feel alone in our pain in our own households. I can't count on two hands how many people I'm trying to keep up with in here and shuffling through boards trying to find out gets me side-tracked with the other topics. It is kinda funny in a frustrating way, but oh well, what do you do? Hubby said to form an off-site chat room, but I don't want to cause a stink with the site, and I feel deep down that admin will also see it as a form of therapy for us devout board posters. Chat goes away, doesn't need the space to keep discussions on a board. I know, stop preaching to the choir.

I'd love to hear feedback from everyone....possitive and negative...and who would use the chat if available on this site.

Wendi

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Hi Wendi, Thanx for all your input it helps more than you know. We should all get together and suggest a chat room service for this site, it would be great!! I'm not sure who the administrator is for this site but I'll look into it and get back. Talking in real time is the way to go. Everyone on this site is sooo informed about so many things, it's great. It really helps to know that you're not alone in your misery and yes, talking about it is probably one of the best therapies there is. The meds are great but sites like this heal the sole!!!

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oops! I mean SOUL not the fish, it's the meds I tell ya..

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I guess there are only a couple of us who feel we'd benefit from this. Still haven't heard from admin yet, but who knows.

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Hi Wendiann, Still working on a chat for this site,makes it easier to communicate too. Update: My recent labs showed I have an rf factor now. 14.6 (lab ranges are 0-7.0) so I guess that's a little high. Supposed to get a follow-up call to see a rheumy. I wonder if there is a connection with the DDD/DJD and RA. I suspected for awhile that I had an autoimmune thing going on. Have all indications for lupus but neg ANA this time. I hope they find out so I can deal with it. I have a hard time slappin anything around that doesn't have a name-just kidding, "im too damn tired to be violent. anyway, gonna eat someting so I can take my meds and crash-Hope there's good tv tonite. Happy Memorial day everyone(I'm a vet so I take the holiday serious) xxxxxxxxooooooooo

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I agree- Great idea!

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this is for all you people who suffer from sciatica. 3 years ago i had the x-stop put in. they did it under "twilight sleep". lumbar surgery. i want you to know it changed my life. no more laying still afraid that my sciatic nerve was going to get me! they should have came out with this years ago.

as for the chat room, i see nothing wrong with it! good luck wendi

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KC,

We have to stop sharing the same crap wrong with each other. My body is going through auto-immune crap right now too. Mine is CREST, not Lupus. Didn't show anti-body for lupus, even though it sure feels like it right now. Crest is soo close to lupus that they often have them confused with each other. Can't do much for either one of them, but nice to know that one (crest) isn't as severe as the other (lupus). Drs have me on huge doses of vitamins to help build my system back up from the pnemonia, and I may have to be admited back into the hospital...gonna be against my wishes. I can't take a full breath in because the pain stabs right through my lungs when I try. I have tooo much going on to be admitted back into the hospital right now. Say a prayer for me too!

Wendi

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Hi Wendi, This is my first time on this site and agree that a chat room would be a great addition. It would allow us to be able to respond to others concerns and have converations, and answers to our questions quicker and more effectively. Hopefully the site editors can get this set up for us.
Fiona :)

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By way of introduction, I am the CEO of SpineUniverse. Wendi, I got your email a couple of weeks ago and sent a reply on May 24 to your email which I have included here for discussion...

Wendi,

On behalf of our whole company, I thank you for your inquiry. Its humbling to know that our community advice tool has allowed chronic pain sufferers to engage with each other in a way that helps them get through what is often a terribly difficult and debilitating situation. As a DDD, spinal stenosis, facet syndrome, herniated disc sufferer(S1 - L4 and C2, C3) who has done his best to avoid surgery, I know all too well what everyday life can be like and how confusing it can be to get answers - and I run SpineUniverse!

When we originally thought about launching community on SpineUniverse, we deliberately chose to offer something different than your everyday chat board, believing that we wanted to tap the collective knowledge of our visitors, both clinicians and patients to deliver answers to those who need them in the most efficient way possible. While I don't think we have it perfect by any means, I do believe this vision is the right one for SpineUniverse and its mix of patients and healthcare professionals.

With that said, I have forwarded your request to our entire company so that they can think about how we can better facilitate community and "talk therapy" (love that term, btw). I am not sure what we can do or when we can do it as we are knee deep in re-building our other site endocrineweb.com to improve its content, navigation and community and we are a small company. However, I can promise you that we will take the request seriously and get back to you on some ideas.

If it's ok, I may have my them run some of those ideas by you directly for feedback...

In the interim, please keep the suggestions coming. We absolutely hear you and take what you say seriously. You (collectively) are the backbone of SpineUniverse and a core contributor to our mission of educating and helping sufferers of spinal disorders.

Kind Regards,

Bill Paquin
Chief Executive Officer
Vertical Health, publisher of spineuniverse.com and endocrineweb.com

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i love the idea!

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Thank You Bill. I'm gonna have to check my email filters because I didn't get your email, but appreciate you posting it for all to read so I didn't have to post it myself! I'll keep checking my email's junk mail folder to make sure I don't miss anything important from you. I understand how you wanted this site to be above and beyond other sites and to all of us members it is just that. We have made it a home and feel comfortable talking with each other and giving advice to new people.

Thank you for everything you do! Hope to hear back from you soon!

Wendi

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I'm in for a chat room I was just searching "chat" and came across this. Sometimes we need to talk to people who understand our pains and know that we are not alone! We feel so alone most of the time where nobody understands and absolutely nobody want to listen because it brings them down. Let me know what I can do to start this chat room.

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