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Do You trust your doctor? I did till now I must be crazy

Started by Sam227 on 05/08/2010 1:03pm

I was at the pain management doctor's office. I was talking to physicians assistant going over my MRI. I been having a lot more pain and I need different pain meds. To change my pain meds the doctor has to see me. The physician's assistant called her the doctor into m the room. She said she doesn't understand why I need more pain meds because the MRI said nothing. The doctor was pointing at my folder of all my x-rays and stuff. The surgeon that has scheduled leminectomy and a Fusion has the same pile of tests and x-rays. I asked the physician's assistant what she meant. Basically I have nothing wrong? I haven't worked in eight months in massive pain and scheduled for major surgery. HELP

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Is the doctor the physicians assistant called into the room YOUR surgeon? Does this dr believe u and support you? Is this dr the one who scheduled ur surgery? Is there any leeway to possibly get different opinions on what ur diagnoses with and what ur treatment should be? I would advise getting multiple opinions first. Take care:)

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Sorry I didn't explain things better, Just frustrated and mad. Basically I was at pain management doctor's office. My pain management doctor said in all my charts there was no reason that I Could have pain. And needed more pain meds. I am scheduled for a leminectomy an fusion by a surgeon at another office. The surgeon has the same charts. The doctor's assistant at the pain management's office said I need surgery also. What I was saying is my doctor at the pain management office is SO concerned about prescribing pain meds she lied. I don't think she's ever looked at my charts. Thank you. Hopefully no one never went through a thing like this. I was wondering if other people had problems like this. I live in a small city this is the only pain management doctor here. So I have no choice other than to go there. Frustrated /Mad

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Sam,

I am wondering how close you are to me? It sounds exactly like my pain management office here. I don't know if they even look at the MRIs and xrays here. I was pretty much told that there is no reason for my pain and that I shouldn't be having the problems I am having. To me, pain management is a joke, but necessary to see them every three months so they can continue to write my scripts. I'm going in on Thursday, don't know who I'm seeing as they can't hold on to a doctor around here, but since I've been sick with an upper resp. infection, I can't have any procedure done, I'm gonna take my time and make that doctor talk to me...take the same amount of time a procedure does. I have extra questions to ask and I will get very pissed off if he only gives me the 3 mins he normally does. And they can shove their piss test, I don't want to pay for something I don't need to have done because I know for a fact they don't check them. I've even been told they only check a small percentage of them for illegal drugs. They only started piss testing people since last year and have no base line to go off of. They don't know my morphine levels and if they did, they've never said what they were. I got the bill last time for their "new and improved" sample cups and it was 230 bucks...kiss my pain-filled rear-end. It's not voluntary, so don't bill me for it. They get 1800 to 2000 dollars for every patient that walks in and I know they have alot of patients and alot of patients they don't help at all.

Sam, don't let them talk down to you, I know they are all you have in your area, it's the same way in my area too. I have told the hospital's manager that one nurse will not handle my case anymore because I overheard the witch tell the doctor that I was faking my pain. I joke alot, because that's how I deal with my pain when it goes over that 10, but I'm not gonna do that on Thursday. They wanna see how bad I hurt....I'll show them, let my blood pressure rise, let them see how pale I can be...

I hope the best for you Sam.

Wendi

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Wendi
yes the piss test is really ridiculous. Most all the doctors think they are god and own all of us. Yes we need our pain meds more than any drug addict! We have massive pain that the doctors don't even understand. It must be hard for a doctor that hasn't been through BACK PAIN to prescribe medication for it. It would be nice to know how a pain management doctor is trained. Does anyone have any ideas? is there a pain management doctor out there that could tell us how they are trained???? Or someone that's worked for one. Thanks again

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I recommend getting a second Dr to over look your MRI.
I went through the same thing! I had suffered quite sometime. I eventually did find a Dr. I was very ill.
I had began to throw up because of intense pain.
Consider this; Just as some people are better at their jobs than others, the same applies to all Dr’s.
I would ask for another Dr. I would advise you not allow this Dr. to refer you, for the simple reason he may just send you to a friend of his. Some Dr’s are better at their job, more understanding some Dr’s may have had a personal friend or family member go through the same thing. Thus leading them to understanding your siduation better.
LOOK for a different Dr. do this on your own, then ask to be refered to that Dr.
Research is very important. Dr’s lose their ability to work in some States and just move to other states, thus no one knows their back ground. Information is key, knowledge is power. Study- seek, and find a Dr through the system. Remeber; NOT one refered by your current Dr. Good Luck!

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No one knows how MUCH PAIN another person feels! Remember that and tell them so.
You may have to drive a couple hours, but isnt it worth having your problems resolved? When there is only one Dr in a single area some use this to their advantage! Sorry this happened to you.
I also [ even living in a large city ] went through the same thing! Good luck...

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ALL DOCTORS now are afraid to write presciption drugs. YOU MUST INSIST. After a while, your body gets used to the meds and has to be adjusted. (on the flyer the pharmacy gives u, it states "This medicine may have to be adjusted over time") Ten yrs on them I know. If you just walk away shaking your head in embarrassment you'll never get them. Cry..You must have felt like it when they said NO. Keep calling. What I think they were refering to was you had NO changes in yr MRI or xrays. But the change is internal. Plus it's only for a few months. Don't let yourself get too high. For your own good, after surgery. I guess I was and the surgical pain for the first few days ...Well I said to my doctor "Do not come close, I am going to rip yr eyes out." No pain control in the hospital. You have some anger inside u ...use it. U have too ,to get anything now. DEA threats are awful to some drs.The BAD drs r still out there, the good ones are afraid to lose their license.

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Candyk
Has a great point! I have gone to the same Dr. 9 yrs. One the same medication, it begain to fail. The body becomes immune to the same medications. I will tell you what I did. I went on line looked up the newest information thus found a sight which told/shows a persons body becomes immune to the same medication over time. Thus exsplaining how the medication does not work as well. I printed this information out { very cautious in how I presented the new information to the DR.}. I went on to exsplain how long I had been on the same thing and maybe a change in medication would help, plus allow me to even take less medication. It worked. That very day he looked at what I had printed out plus what I had high lighted. I will exsplain how I approached him, this is "VERY IMPORTANT”.
I approached him in this manor “ I do not wish for you DOC. to misunderstand, you are the one with the PHD. I have been looking for new medical news on the internet.
I printed out some information which shows long term how the physical body changes. Thus Sr. on some people a change in medications allows the paient to go down on drugs injested. I went on to say I understand your training plus respect the fact you see people daily. Their is a sight where you can { Mayo Clinc } they show new tiral studies and the findings -thus
showing all new information for each of us concerning all medications, illness, all things combined.
It is to all our best interest to be in a place we are not TELLING these proffessional men and women “what “ to do, but what we have found in attempting to help our own case. If you tell them you may be able to take less, thus ask in this way what DR is going to say “NO” concerning a patient wishing to go down on drugs? None! It is a great way to approach. If this doesnt work look on line find a good Dr. ask to be refered to them and then tell the new DR. the same thing! Once stable ask to be refered back to your origanal Dr. If you wish. This is just how I went about doing this.
I found doing this research ourself is so helpful, they see you are becoming involved in your OWN HEALTH and research! It helps us to try and attempt to help our self when faced with a Dr as what was exspressed above their unwilling to think about changes.......Approached in a different manor makes a drastic difference! Thank Goodness for this link which brings insight to each of us through discussing how to help our self....Good Luck! All Dr’s are different in their treatments. Try and remain open minded. I hope this is helpful to you or at least someone.

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Just to give you an update, I wasn't able to go to my appointment. I have to call them when I feel better. It is sure a bitch when you are sicker than a dog and have back pain and can't sleep, but can't sit up. My fever finally broke at noon today after two days of a high grade fever. I'm trying to sit up for a while, but don't think I'm gonna be up for long. Isn't it nuts when you feel as if you're freezing, even have the dead toes, but you're burning up? LOL.
Got to go lay back down! Take care all!

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One week, 6 hours ago I went to lay down. Now I'm home after being in the hospital and taking it one step at a time. Pain is bad, but I'm dealing with it.

OK...HOW WELL DO YOU TRUST YOUR DOCTOR?

NONE at all. Pain Management is screwing me big time. I got a call today from my social services rep telling me that pain mgmt doctors keep sending the forms back with 14-letter words that don't mean squat to social services and they don't fill the forms out completely. I'm going to go back to my old primary care physician on Tuesday and we will get those forms filled out and in layman's terms. I was told that my social worker has been doing all she can and I believe her because she's done things and gotten them done before. And after this is settled I will go back to my pain center, grab all my records and tell them where they can go. I thought they were doing me good....kiss my rear end, they are not on my side at all, they don't care about me..they care about the 2000 I bring in every three months and they know that the longer they string me on, the worse I have a need for them! They turned me into this morphine filled junkie. (so sorry...."it's not that you are an addict, you are on a theraputic pain regiment".)

Alright.....I gotta get off this rage.....might pop a blood vessel and I can't afford to go back to the hospital for another week's stay. Good to be home gang!

Wendi

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Hi Sam227 and all,
I have RSD, and a multitude of pain conditions. Over the years, I have tried step by step each pain med known, including the anti seizure drugs currently used. Finally, I found a study out of West Virginia, Dr. Vining (?), that indicated a single category of drug will NOT change pain. For me,working with a great neurologist, Dr. Knobler, who is also board certified in Internal Med, and has a Ph.D. in anatomy, I have found that the mutliple category of meds absolutely works. Am I pain free? Of course not. However, by combining a narcotic, (like oxycontin 10), a seratonin uptake, (paxil, or whatever), muscle relaxant, (like zanaflex), and one of the anti seizures (like keppra) the pain, (stabbing, tingling, deep muscle and even allodynia on the skin) is at an arm's length. If anyone is near the Philadelphia metropolitan area and really wants to talk to a doc who knows not only academically, but personally, the issues of chronic pain, look up Dr. Robert Knobler.
Good luck!

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Wendy, I tried to go back to my GP. For Pain management and he wouldn't do it. He said to for the best results go with pain management doctors. My family doctor told me most of the pain management docs are always with the cutting-edge pain pills and stuff. My GP took better care of my pain I personally think to. My back problems are a lot worse than they were. It's so frustrating if I only told you how many times I've been to pain management doctors in the last 30 days. Between a nerve block and change my meds. I've talked to them every day for the last two weeks they keep changing my meds. When they change the type they don't give me enough. The doctor talks to me on the phone almost every day and it's a big huge pain management clinic. They're so worried about giving me too much. I'm up all the time grinding my teeth, headaches and plain old upset I don't have any pain relief. I went to the doctor's office yesterday at pain management clinic. She promised me she gave me enough meds now. This is only after about 30 days changing things. Another thing she told me which I thought was really weird. She asked me who told me I needed surgery , She Did. She said the pain meds would not worked for me for very long. I know as patients we listen to what the doctors say. That's why. I open the topic we must be crazy to trust our doctors. Please let us know what happened to you.

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wendy that was why you ended up up in the hospital? My mind is gone

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Hi Everyone,

I understand where you are coming from. I was surprized with the new drug test. Mine came back A-Okay! I had surgery for C-4-C5/ plus now have 3 more herniated disk. I also have what is called Complex Reflex Dystrophy. I went to one Dr after another. I spent a year in a wheel chair.
It is very difficult to exsplain to some Dr’s what we are all going through. I did have a Dr. once who would not work with me. I have found keeping copies of my own files is a plus!
This way you have what has been said in your own hands, above when I spoke about taking the information which had new medications suggested to my Dr. I also had in hand my own file.
So no one could say “ Oh you have No problem!”
I’ve been there, I can relate to you when you say you do not trust your Dr.
I changed { did alot of praying } eventually ended up with a great Dr. one who actually works with me.
My health has went down hill over the past 14 yrs. it has been that long since I began my journey.
I understand how frustrated it is, Goodness it is rough.
What I suggest, is getting a copy of your files, and keep them.
It may sound silly but next time you are confronted with someone who says “ YOU ARE NOT IN PAIN” you can show that person the report. I even had one Dr. { before my sugery } tell me" Oh it is a small ruptured disk pushing a little on your spinal cord"! I look back now and wish i would have realized I should have said “ LITTLE-!” HOW MUCH ROOM DO YOU THINK IS IN THAT TINY SPACE! LOL There is not any room for anything to come out of place-if and when it does it hits nerves thus leading to pain. Even a lay-person is smart enough to realize that!

I would say gather as many files as you can, then try and get to someone { I drive 1 hour and 15 min. to a Dr. I could see one closer but not as good as the one I now have. I have gone 10 yrs to this one and he knows I will not complain if it isnt serious. The number one thing any of us can do for ourselves is getting a Dr. who will listen.
That is the first step. It takes the Dr.’s awhile to learn us—and build a trust.
I think this new drug test for all of "pain management is something the medical board has begun to enforce upon them".
They are held —or the ones who have to answer to our family, if we end up in the ER and not breathing because of medications. This happened to me once. I was in a coma for 4 days.
They are the one’s the medical board looks at, they have become strick on the Dr’s. So many drugs are ending up on the streets. So now if the correct amount isnt in our bodies then they know it is going somewhere. I actually know a patient who was fired—yes the pain management fired her, sending her a registered letter because her test came back wrong. This was a manjor blow—now she has no Dr to help her.
I may not like all the extra test, but imagine not being able to even see them?
I do not know what this woman will do, she said it should not have come back wrong—but it did.
There has been a rise in the sales on the black market for prescription medications. We had a 14 yr old boy die of a over dose on the very type of medications we all take. I think this is why we are now being ask to take the drug test.
Like I stated I have been going to pain management 14 yrs. This year was the first time I was ever ask —or they ask for me to get tested—this yr. after 14 years, so something is up.
Good luck everyone. Hope this information answers some of your questions....

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Sam,

I was in the hospital for double pnemonia and costral chondritis. Am still on enough more meds that I'm starting to have a hard time remembering when and what I'm taking. The hospital sure messed up my normal med routines and times. But all in all the staff was great, nurses knew not to mess with me when I needed that extra shot of morphine because my back was flairing up pretty darn nicely, even with all the steriods, blood thinners, and antibiotics. There was one nursing student that I would let give me IV meds anytime...she didnt ram fluids through the IV cath, she took it slow, even with flushes, and had a great bedside manor...and if I was a man, I'd be wanting to tap that, but damn... OK.....

The reason I'm going up to my original GP is because my current GP doesn't mess with disability no way, no form. My original was able to diagnose a rare infection in me in one day and I respect the man for it. I only switched GPs is to have the same one as the kids and he was close.

Pain Management sent procedure/visit notes to my social worker. She only wanted to know if they considered me Incapacitated (3 questions) , and if so, the worker would cover all my medical bills from the time I applied for it. He (pain doc) wouldn't answer these questions as I am told by his office because "he needs to examine me". Like he hasn't done many times before....DUH! I am an incapacitated step-parent....I can admit that I can't take care of my kids anymore, but I can also admit that they are older than 12 years old and if they can't wipe their butts by now, I was in trouble to begin with. LMAO...sorry...come on...it was funny~
Pain management also included in their findings "Ms. Wendi is a pleasant, polite, caucasian female, who doesn't seem to be in any discomfort while sitting"...... I can be the biggest bitch in the world, but I wasn't raised to be rude, and a big bitch who complains about everything. We were taught to be pleasant, polite and respectful of others ,and of course how to make fun of yourself, take a joke and be able to laugh at our own pain. Right now I'm laughing because I have the biggest "roid ass" from all the prednisone they've been shoving down my throat and IV. I've never had meat on my rear end, so I think it's funny I have a fluid filled shelf for an ass. It's good to laugh, but why do I have to be a bitch to get what I know is right for me. They made the reports look like I had a choice for an epidural....they don't do more than 3 to 4 a year on a person, so in fact, I don't have a choice if the last quack didn't do what I told him he needed to, I had to go up to 6 months in pain...where's the choice? PHEW...told you those steriods will get ya....I can say "Wendi has roid rage going on", but I can also say right now...dont *&% with me. You're thinking..."poor hubby", but we are both dealing with smoking cessation and he can smoke other things while I'm still trying to breathe.

I wish there was a chat room attached to this site. Would be great to chat one on one in a group setting live.....compare notes, use the talk therapy, get it out... may have to take up suggestions and set up my own chat site or better yet, ask admin to set up different chat rooms for us poor broken people.

Sorry for the rant, rave and roller coaster, but it sure feels great to talk to all you people. I do consider you all friends.. Night, Wendi

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Sounding familiar to me too. I have been seeing the same dr. for close to three years. After the first year they took xrays which suggested a bulging disc. Two years later numerous trips to the dr. and who knows how many different medications later I have an mri done. This confirms a bulging disc except that the dr says it isnt touching a nerve so there shouldnt be any pain and wants to take me off the pain meds. My pain hasnt gotten debilitating yet but certainly isnt getting better. Guess I need to look in to a second opinion. Not sure where to start. Any suggestions?

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Steve,

Have you tried looking up a specialist in this site? You probably have and think I'm nuts, but who knows anymore..I could be losing my mind too...LOL. I'd personally start calling around, seeing if you could have a consult that isn't gonna cost that arm and leg. Call around to the different hospitals and investigate the track records, see if you can get any testimonials first. That was my biggest mistake...thinking that I was being sent to see the best around. My primary care physician didn't know how bad my nearest pain management clinic was. He knows where to send you for surgery, but didn't know the pain aspect of it, and tomorrow after I make that hour long drive to go see him for the first time since going to pain management (which has been 5? years), I will inform him of what they haven't done for me. Alot of doctors don't get feed back after refering a pt to pain management, sure most things get sent to your pcp, but when does he have the time to sit down and read it if you aren't in his office every three months? Also, ask for copies of your records, and keep them with you. I am still waiting on copies of mine and regret not getting them soon after being seen. Thanks for the reminder...guess I'd better get off here and call the hospital and make a stink about not getting a return phone call on my medical records.

Let us know what you find out or if we need to dig deeper into our heads to help!

Wendi

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I think Wendi has a great point! I would follow through with what she suggests.

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Just to update everyone on how well I trust my doctor. My original primary care physician has now got me on more meds. He had blood drawn because he needed to see tests that the ER and hospital didn't take. I'm now on a huge dose of B-12 and Vitamin D. I have no strength in my arms and they keep going numb on me. He's not saying what he sees yet, he doesn't want me to get upset until he's had me on these for two months and he can re-test me. I trust him. He's sending me to a neurologist because of the arachnoidosis and asked me what I thought pain mgmt was gonna do about it. I didn't know, I thought they were there to take care of me, but guess I'm not the only patient he has that has problems with that certain PM clinic. He did sign the incapacity report, and does agree that I meet the requirements of it, whereas pm kept sending procedure reports in and not even touching the incapacity report. I am gonna call the pulminologist tomorrow about the stabbing chest pain that came on suddenly yesterday morning. Think it's the pluerosy, but don't know. I would've gone to the ER, but I've had to deal with more pressing family issues since last Thursday. I know, I know....don't need the lecture, but being mom comes before me.
Anyways, going back to my original primary care physician was a good thing. Just because the I like the family doctor the kids go to doesn't mean he was the right one for me and my condition. In fact, the kid's doctor wouldn't help me, no how, no way. And if I didn't go back to my original, I'd be stressing how I was gonna pay for my 5 day stay in the hospital instead of trying to get better.

My advise to all of you...make phone calls, get testimonials from others, and stick with who you can communicate with and who actually listens and hears you.

Wendi

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Wendi & Everyone,

Loved your comments. I think it would be great if we had a place to all chat. This would be great for us.
Seems this has helped me as well as others. I have been ill last 3 days, hope I do not end up in hospital. Just logged on was so ill I was down. Looks like I am getting better.
I had my meds. changed almost two months ago. I have gastritus and acid reflux to go along with
my R.S.D. and spineal problems.
Spent 3 days throwing up and in bed. So weak now I have to log off. I wish you all the best of luck I will
write when able.........

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Complex,

I hope you get to feeling better hon! My prayers are with you!

Wendi

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Here's an idea-- instead of coming online to complain about all of your "pain" and imagining chat rooms made of the same things in fairy tales-- why don't you all go out and GET A JOB?!

What a fantastic idea, if I do say so myself.

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To NotFakingIt:

Why don't you go to another website since you obviously don't want or need this one!! I have a few choice words for you, but unfortunately this website prohibits using them!!

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To NotFakingIt:

Why don't you go to another website since you obviously don't want or need this one!! I have a few choice words for you, but unfortunately this website prohibits using them!!

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Hi guys
A website like this there will always be children that play. If that was an adult you know what you can kiss. In the business I was in I was with scumbags and losers always a comment like would of a normal life for me!!!!!!! I'm sorry for anyone that got upset at this person. I thank every one that gave me their personal experiences and comments. Again good luck to all. My surgery date is July 22. Thanks Sam

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Sam:

That guy (or gal) really irritated me!

Anyway, wish you luck on the 22nd.

Pam

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I have to agree with Sam! NotFakingIt is NotWorthIt.

We know each other in here well enough to know that we aren't faking our problems and 99.9% of us on these discussion boards would love to be able to go out and find a job to support our families! I can honestly say for all us 99.9% that we don't want to have to support our nearest pain management doctors but we have no choice because we are in real pain!

I have some choice words to say, but I'm gonna let it go because I'm the one who's pushing for a chat room in here and I'm not gonna jeapordize my membership because of one person! AMEN!

Wendi

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