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New to the site and need advice

Started by pocono on 01/15/2016 4:51pm

I am scheduled for a nerve stimulator trial and am very nervous about it. I would like to know how it has helped or not helped others and the things you can do and not do. I know I will not be able to go for MRIs if this is permanently implanted but what about mammograms? I know I can still do x-rays and ultrasounds. I should say I have had neck and back pain for many many years but this is to try to treat pain that started about 10 years ago. I was going for a walk and all of sudden had terrible burning, tingling pain in my right calf. Over the years and especially after my hysterectomy the pain got worse. I have seen multiple doctors and have tried I think almost everything and nothing works. They think it could be a nerve sheath tumor however it is very deep in the pelvic wall so they can't do surgery. Nerve blocks, physical therapy, chiropractic, myafacial massage, acupuncture, nothing works to reduce the pain. It has traveled from my calf to my thigh, groin area and runs across my incision and into my lower back. I am not sure if this will work for me but I am willing to try it since the pain is so intense I cannot do many things like even going for a short walk. Any help or advice would be greatly appreciated.

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1 Response


The trial is a breeze. I loved every moment of it. I felt like I could speed walk if I wanted to!

I have had my permanent implant for 3 1/2 years now and it does help with the pain. You just have to get it programmed a few times to get it right. I felt like I was bothering the rep by being re-programmed many times, but its normal. Once you've had your stimulator for a while, you will know if something changes in your body, for example: my back started slipping forward more and it felt like the stimulator çhanged patterns and intensity.

The only testing you won't be able to have done is an MRI and that's because MRI's use a magnetic field. You will have metal in your back and a battery pack in your butt cheek. Mammograms, CTs, xrays, and ultrasounds are okay.

It's worth a try, especially because the trial is only for a week! If you don't like it, you don't have to go through with the permanent implant. I was more anxious than nervous with mine.

Good luck and keep in touch!